Just a last few pics with hair.  No pain, I was asking Paul if he got the prayer shawl and the green scapular (which by the way if for a peaceful death!) in the picture. Treatment started 1:30 and I slept through the whole time,  Ate dinner in a trance and went home and slept deep. Paul got me 6 PM and we headed to the club.  I had a great time with my night time friends.  Woke up early today and started again on thank you cards,  big job, but I have alot to say.  Also responding with emails and texts.  If you cant respond here feel free to contact me on FB or cel or text 954-803-1477. I do it all!  

I called PCIP and accept that I will not be qualified for 9/1 and will have to wait for the 10/1 start time, IF I get approved.  Isaac finally got in my way,  their offices are in New Orleans and they are closed til next Tuesday!!
I had a nasty encounter with one woman who was mad i mentioned ObamaCare.  She gave me quite a tongue waging about why should they pay for other's insurance when they put out so much to pay for hers and her familys.  I will have to think about this. I would expect people to keep up with me and the trials and problems with this new policy.  The Republicans are sure making it a sloppy procedure.  

Meanwhile I would like to thank the many bridge clubs who are having fund games for me.  It is wonderful and uncomfortable.  November 4 will be the last benefit game at the Pompano Club in the afternoon.  But it will be huge with many bridge stars coming out to help build the trust fund.  

Remember, knuckle bumps for awhile.  I am a big hugger and miss it alot.  

God bless you and keep you safe from disease and heartbreak.  Love from me.

Today I see Dr. Patterson at Holy Cross to get my blood work result and get cleared for chemo on Wednesday afternoon.  Next week I am off which means I get to not spend $1500 for treatments.  I am waiting to hear from PCIP.
They say the hair falls out during the 3rd week.  Personally, I am not excited about a wig and hope to wear scarves if it happens.  
I sure wish you would all leave comments for me. I think it takes some work and that is why I havent heard from you.  The google account is free.  Sign up and leave me some notes here.  Thanks all for sharing and caring.

New problems,  what happens to medical procedures when a hurricane is coming?  Supposed to have blood work 9 AM Monday morning and teach a class 10:30 at the club. So I am ignoring Isaac.  I feel good.  I am going to take the nausea meds again today.  PCIP is taking a long time.  I faxed the denial letter last Thursday since snail mail was unsuccessful.  Then Saturday I got a letter stating they are missing information, looks like they are missing the denial letter and maybe a copy of my passport.  So we are stalled. I must take care of this next week.  Isaac - GO AWAY.   Benefit scheduled at the Greek Church on Tuesday, Paul and I will plan on playing there.  Thanks folks! Isaac - no time for you.  These benefits and your generosity is much appreciated.  We are going to the club this afternoon for the brunch and game.  Have a safe day.  

Jeanni,  Malachi in the Old Testament says, "Test me on this says the Lord Almighty, and see if I will not open the floodgates of heaven and pour out so much blessing that you will not have room enough for it."

"then those who feared the Lord (reverenced Him) talked with each other and the Lord listened and heard.  A scroll of remembrance was written concerning those who honored His name."

That would be you, Jeanni

A friend of ours who is president of a fine seminary wrote regarding the book of Malachi that it ends with a message of hope.  Our awesome God is capable of healing, giving power and bringing  restoration. 

When we walk with the Lord, we walk in hope.

We are walking in hope with you. Love, Lil and Dr. O.

I am very blessed to have doctors and nurses who are believers as I am and keeps the line of grace always open and headed my way.  Love you back.  

I feel good today, anniversary party at the club tonight.  Nancy is making a chinese/american buffet for all of the guests as our present.  Lots of helpers and fortune cookies. I have 6 bridge sayings as the fortunes.  Would be best if I could grab a nap between sessions.  I will tell Paul, he will make it happen.  Wine and champagne await.   

Here is a picture of Paul and I at our 40th Nova H.S. reunion.  We met at our 30th class reunion.

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Emotional day today in a good way.  Sid Wolkoff came to the club and we celebrated his 95 years and playing everyday.  I introduced Sid and told of my knowledge of him over the past 30 years.  How he dresses so well and loves the ladies.  We sang Happy Birthday, we sang "For He's a Jolly Good Fellow" and then I turned the mic over to Sidney.  He said he is using levitation?!  Anyway, then he said he is going to give Jeanni a passionate kiss on her left forehead and then I will ask Paul about a menage a trois.  Whew... what a guy.  We cut the cake,  and then we left for Holy Cross.  Takes just a few minutes to get there from the club.  I finally got the drip going 2 PM and slept a good part of the 2 hours they administered the drugs.  Guess Ill take a nausea pill this evening.  So far so good....You should see me.  maybe next week Ill have Paul take a pic.  I have this beautiful long and wide shawl that is perfect for a blanket, a pillow, my green scapular and an angel pin.  In my purse is St. Pio and St. Peregrin, blessed by monsignors (they are hiding or I would check the spelling).  I am being prayed for throughout whole churches.  I thank you and I thank you.  Once again,  money out today $1104. Checks and well wishes $1250.  I cant thank you enough!  And thanks Gloria for my crystal cross that is the same as my birthday stone, topaz.

I feel tired.  I am going to play with Juan,  I had a glass of wine.  Hope that's ok.  Peace, Love and Praise.  Everyday I have something to be grateful for.  An attitude of gratitude I wish for everyone.

We did not get to play today, we dont like to make a sit out.  So we left and now I am home eating homemade chicken soup by Linda Church and delivered by Ken along with some avacados.  Thanks sis.
Blood work is perfect and I am all set for chemo Wednesday 1:30 at Holy Cross.  Dr. Patterson is pleased and didnt have much to say cept dont take other meds right now.  I dont want to get any germs so knuckle bumps are the way I am going to greet people now.   I've got this little rash on the back of my neck, its just annoying.
Everything kinda gets to me right now, probably best if I take a break from the club.  Tomorrow we will pick up the cake sing to Sid and then go off to chemo.
I get to play with Juan Wednesday night. Hope they give me some stay awake drugs tomorrow.
Love to all my friends,  prayers are still required.   I called PCIP today, they have my application but they still havent received the denial letter.  She said I should call end of week.  Since they got the application 8/9 IF I get approved then August bills should be covered.  This was a very emotional phone call for me.  I pray alot and I know you will pray I get approved.  Thanks so all for sharing and caring.  Love you.  Big parties, our anniversary Friday Night,  Marty Bergen coming Oct first.  Larry Cohen coming in November.  I mean really??!! They are donating all proceeds to the trust fund.  I love this family of mine.

Just want to record how much fun it is to be at the club with people I know, playing a game I love.  Our love of the game is the cement, our friendships blossom, not all the time, but enough to make it a place to get there early and socialize.  Dean Kogut up there at The Inn at Ocean Breeze in Boca is having a charity game for me.  I think there will be many of them, but it starts Monday 8/20 12:30 PM.  Paul and I are eager to see all of you again and I happen to be available so we will play at Deans tomorrow.  Come and see me!  9:30 AM blood work.  You need to keep praying...I must have the proper white blood cells in order to get the chemo.  I feel great so I think I ll be okay, but just in case.  Pray my blood is good and we can continue to fight this bastard living in my forehead.    Time for dinner,  coming Paul....  Thanks everyone!!

I am reading all your comments, all your cards and answering all your phone calls.  I am grateful for this journal which allows me to tell all of you what is happening and how much you mean to me.  Today I came home to a pile of doctors and hospital and lab bills and a big pile of checks and cards!  Thanks so much!   Big surprise is the additional bill from Moffitt.  We paid $1500 to go the first time for the evaluation, I saw Dr. Gonzalez and Dr. Conley and they did a biopsy.  So now we get a bill from Moffitt that includes office consult: Gonzalez $423,  Biopsy $150, Office consult: Conley $423.  Self pay gives me 50% off.  But really, thought it might be covered.
Learning to live like I am sick will not be easy for me.  Today a stray made its way into the club, I picked her up, called her mom and delivered her to the groomer across the street.  Such a cute Shitsu like dog.  Anyway,  Im not supposed to pick up anything, and certainly not take a chance the dog had germs.  She was scruffy, got out when the a/c man was not watching.  Thanks goodness for collars with numbers.   I will try to learn but if you have a sniffle stay away from me please.
Aunt Ann sent a Green Scapular.  I will wear it.  Prayers are wonderful.  I feel great.

My forehead is not as red today.  I feel fine.  I had a good nights sleep.  Bridge today, home tonight.  I am drinking lots and lots of Kangen water to keep in an alkaline state.  I am laughing alot and will get lots of sleep.  No helpful nutrients while the chemo is at work so I have to keep up my immune system on my own.  You will see a juicer at the club soon - thanks to Xio - where I will drink wheat grass and stuff like that.
I am very happy with my team of doctors, nurses, techs, and my team of family and friends.  WOW.
 

Holy Cross at 7 AM, got in, filled out papers, paid the lady and was brought to the back where they put me in a gown, covered me with blankets and put at needle in my hand.  I hate needles.  I told them I am catholic and was happy to be in Holy Cross except for the outrageous price for the port.  The nurse prayed with me and assured me God loves me.  I responded, God is right, get this fu..king devil out of my head.  Alot of you are praying for me,  keep praying, I feel them.  Hopefully PCIP will save me.  Anyway so Dr. Tate, the interventional radiologist, after finding out I have angiosarcoma says "didnt I read your slides?"  And I said yes with Dr. Onstad (and he read them at no charge I think.) anyway.  Now I say, do you know what I paid for this port since I have no insurance?  They (about 5 of them) say no. I say $4337.84 - sooooo I want the deluxe model,  the preferred treatment, good drugs and a trip to disneyworld.  They promised me everything cept Mickey.  When I finished at 11something we went to Dennys for lunch.  Back to Holy Cross for chemo instruction with Morgan, Dr. Patterson's nurse, but she is really my nurse and I love her too!! Anyway then they came and got me and my $1100 for chemo at 1 PM.  Finished 4:30 PM.  I feel fine,  really bruised but good to go.  I will be at the bridge club tonight. Thanks Paul for being there always. 

Ive got the denial letter,  it will go in the mail tomorrow.  I got the flat price for everything.  The port: $4337.84 once time charge for putting it in and taking it out.  Chemo: $1104.91 each visit.  Bloodwork: $838.99 each week.  Doctor visit: about $100 each week.    I am home tonight.  All day at hospital tomorrow.   I need to post a picture.  Angry bastard today.  this is actually a good pic of this devil.  Shithead comes to mind, hehe.  See the brusing?  Hurts right there.  See my fingers, hurts back there too.   More and more donations.  I really thank you and know who you are, soon there will be a list of your names.

News!!  I got to see Dr. Patterson today at Holy Cross, I got my questions answered and my fears quieted. So yes the chemo is only put in me once a week, 24 hours and then it is gone from my system.  Yes, I will get a port, it is safer and I HATE shots.  The port goes in Wednesday 7 AM,  I think i will be infused (like that word?) Wednesday afternoon.  Here we go, finally.  They are charging me as we go.  I should get the denial letter today.  PCIP within a month?  Prayers still required.  Okay to give me feedback here.  Hugs to you all.  Next trip to Moffitt is October 9 for evaluation.

Another day of being overwhelmed.   Numerous donations, that will certainly help.  Bernie was there today, she taught us alot.  Then a game with Ada,  a great woman,  my friend.  But then after all it is bridge and  we struggled.  It didnt help to find out by the way of the financial person at Holy Cross that I will probably and most likely need a port so they dont have to put needles in my hand.  Of course, stupid me, I thought the words "1/2 hour, once a week shot" meant that's it!  But of course it fills the port once a week.  But I had to stomp my feet and cry about that. Lil had to talk me down. Good I didnt do that in front of the doctor.  I just have to accept that they have talked and they know and they will get me going on whatever path I have to walk to kill this devil.  Thanks again everyone.  I will "buck up".

I found this post from 7/30 and I am here to tell you, the whole paragraph is bullshit and I double!  So the first question they should ask is "do you own anything?" Cause if you do you probably dont qualify for financial aide at all.  And there is very little charity money available...so they say now.  So still being stupid (or in shock) in July I delayed getting PCIP.  But the application is finished, just need to send the denial letter and then hopefully I will have insurance in 3 or 4 weeks which should be in time for the big surgery at Moffitt.    

I just met with a "very important person", she told me so herself. She said when you get to see me there are miracles coming your way - charity money wise. In fact I might be alot better off WITHOUT INSURANCE!! God, is this your way?? Did You plan for me to find the cheaper more effective way to deal with a life threatening tumor?? Anyway, now I get a call from my guardian angel nurse who says the head pet scan reader sees NOTHING!! And he want to get my slides reanalyzed and re-diagnosed by a big pathologist that knows the most. PRAY!!!

It was a calm nice weekend.  Nothing as fun as a birthday party for a loved 5 year old with family all around.  Alan Minton will host a fund raiser for me Monday 9/10 at his game in Miami.  Thanks Alan.  Bernie DeYoung will collect money for me at the Ft. Lauderdale Bridge Club.  Your generousity and concern overwhelmes me.  Can't wait to kill this thing.  My left eye is heavy, I have a constant headache now.  Time for sleep.   

Well, hell hath no fury like a younger sister fueled by a baby sister to get this insurance application mystery unfolded.  The application is complete. Meanwhile I have an appointment with Patterson at Holy Cross Tuesday 9:15 AM,  here we go.  Yeah!!  So prayers are working, I will give the lessons on Mondays and play with Ada, Tuesday is my day off!!  See.... I believe and I have faith.  Thanks Linda Church and Gloria Currie my sisters, and of course my daughter.  I love you and am so grateful you are a part of me.  My aunts at the Villages send me cards most every day.  Thanks, I love you.  People are sending checks, emails and cards. Lil Onstad keeps track of me every second.   I love and appreciate you.  God is keeping me busy with bridge - I LOVE that.

I should be headed toward my first chemo session soon.  I hear the medical oncologist from Moffitt called the oncologist here at Holy Cross with the regiment.  When they submit the plan to admin then I will get a call with a price and probably a date.  We are not eligible for any charity money or financial aide.  The trust at the Pompano Bridge Club is to help us.  Make out checks to The BridgeJeanni Needs Trust, mailed to me or the club.  They are not tax deductible.
I am still waiting for the denial letter so I can apply for PCIP.
My head hurts,  its time to shrink this devil tumor.  Please God, Please let it be soon.  Pray for my doctors to get this right.
Thank you everyone, I am reading all comments.

Changing over from caringbridge to this blog spot.  Please follow me here.

I will continue to keep you updated on my progress through this blog.  If you subscribe to e-mail notifications from this blog, you will automatically receive updates. Thanks again for your uplifting words and your generosity.