Wednesday, September 5, 2012

Well well well,  interesting things happening.  First of all I feel terrific,  I have no pain, I have energy and I dont fall asleep at 8 PM.  I assume that will change next week when I go back on treatment.  So I am working.  I still CANNOT handle stress, not at all!  If the customers start fighting I start shaking.  So I will not direct too much til this is over and then probably just 1 night a week.  I have a terrific staff of directors who are capable and not lazy. Also on staff is very competent Jesse Laird who has become my Assistant Manager and my all around take over guy if need be.  So far I am doing a good job being the manager, playing as a teacher, teaching classes and taking care of my health.  Paul is a Godsend and your prayers are working.  You must keep praying however, since I still have no approval for PCIP.  You see the office where my application is in NOLA.  They just reopened yesterday. The number I have to call tells me my application is still incomplete even though i have been faxing and snail mailing them since 8/9.  She tells me there is still time to be approved by October and I should call next week!  I says can you help and expedite this for me?  She says everyone needs this insurance and unless I am dying there will be no expediting.  So there!! Am I dying?  No way!!
I still need to contact Moffitt and find out how much, how long, how many doctors, how much money will be involved with the surgery.  So far no return calls. And I just got another bill regarding the port!  Another $1339 which brings the price of the port to $5673.84!!  Still worth it.    Lil and Doc Onstad still number one angels with my anxiety about bills and small pains.  The hair is holding.  Less fell out than yesterday, the top of my head is not sore anymore!  The bottom of my foot still painful but I can walk again.   I have more scarves, I am good in that department and if no more hair falls out I will be okay with nothing at all.

So the scarf!  I loved it. And I got a really neat Hermes Scarf from an adoring and adored friend. It is so beautiful that some say I should frame it, and I might.  But I might just wear it and pretend I have another one.  Some people have TOLD me to buy a wig.  Its not going to happen folks.  2nd pic is from today, yes its really short, like fuzz, and very gray, but the forehead is really looking happy and non menacing.  The devil is in retreat.  Now to rid myself of the bad, infected, compromised skin and I should be cancer free.
Would be a nice bonus if the chemo treatments also cured me of the precancer spots on my cheek and nose.

5 comments:

  1. Like the scarf...you look very chic ! (You always were to me)
    Good to keep up on your blog ..I read it when I can.
    We just got back from a quick day trip to NYC to attend a funeral service of one of Marie's dear friends of over 34 yrs. He, Ralph, had lots of ailments-lyme disease, prostate & leukemia, very bad arthritis...a very sad thing...but he's at peace now & we're glad to be home again.
    Just in time for my regular Meals On Wheels deliveries on Thurs ( for the past 12 yrs ! )
    Always thinking of & praying for you ..loads of Love , Mary

    ReplyDelete
  2. Hi Aunt Jeanni. You look beautiful in your scarf! Lots of love, Kara.

    ReplyDelete
  3. Ha! Now that I know I can comment here, I just wanted to thank you for keeping this blog. I check it constantly! You are in my thoughts and prayers every day. Love you lots. Kara.

    ReplyDelete
    Replies
    1. I am so glad you take the time to read the blog. I can tell the ones who read it. They dont ask, they just come and give me a "knuckle bump" and a smile, and then I know. Or they add a verbal comment on the blog. I know lots of people have lots of troubles, it feels funny for it to be me.....

      Delete
  4. Yes, I found that out too. It seems as if 1/2 my friends have had breast cancer! And I didn't know either. I like the scarf as well. Very chic!

    Candy

    ReplyDelete