First surgery is scheduled for Tuesday 2/5 11 AM, we have to be in Tampa by 9 AM.  Second surgery Tuesday 2/12 8:45 AM, we have to be there by 6:45 AM.  As Paul says one to take it off, next one to put on the graph.  The resection, the left side of my forehead.  If they take that much I hope they at least get it all.   As the surgeon said, I have to make time for this and it's going to be a rough couple of months.  Thanks for your concern and prayers.  Its show time.

The doctor from Moffitt just called.  The spot is Angio Sarcoma and he will schedule the resection asap.  It will be 2 sessions one week apart.  They will take skin back into my hair so I will no longer have hair or any hope to grow more.  The week inbetween is to see if there is more that needs to go before he put the skin patch on my forehead.  I will be a freak, but maybe he can keep me alive.  SHIT! I was too hopeful.

So I cried through the whole appointment.  Dr. Gonzalez is so wonderful but did not schedule surgery.  He told me when the tumor starts to grow back we will do surgery.  If he operated today he would take the large area down to my brow and into my scalp, so I cried.  Then he said "I'll map it out with 8 biopsies" and drew spots on my forehead, then we decided he would just take one biopsy where there was a red mark - to see if it is sarcoma.  We will get the results in about 4 days.  He said something about 3 months and then asked me to make an appointment and come back to see him in a month.  He was patient with me and with Paul trying to explain the disease.  He told me to watch and call him if it starts to grow back or if I get a lump in my face or neck.  He has seen this travel to the lymph nodes.  And so I cried some more.  But that got in the way of my hearing the tumor is not there, not now.  Paul asked if I could take vitamins and stuff and he said YES.  So now I begin what I have been planning.  I will take a regiment of NoxyLane4 and Immunifin.  The first one has a shitake mushroom base and kills free radicals, the second one contains shark oil.  So the plan is to keep the tumor from growing back.  Possible?  I was given no hope of that happening today, but delay it? Maybe yes.  I feel weird.  Thanks for prayers,  I need to ask for more please.

Good Blood work,  and the pet scan is clean.  Here are the words, No obvious FDG avid malignancy in a field extending from head to foot.  So this is good!  Moffit on Monday.  Thanks for your prayers.

Well, very interesting day today and lots and lots of help from my medical teams.  I spoke with the insurance company today.  The woman told me there was no evidence I still had cancer so they would not approve any procedures!  I wanted to call Barack but he was a bit busy today, so I called my angel nurse and told her I must be cured!  She said no, they would call the insurance company and explain that I am in the "middle" of treatment and by no means is the cancer gone.  The doc talked to a doctor that represents the insurance company and finally approved the petscan.  Bloodwork Tuesday 9 AM, petscan Wednesday 9 AM, Doctor visit Wednesday 10:45 AM.   Surgeon at Moffit - Monday 1/28.  All systems on "go".  Headaches everyday now. Praying for continued containment but I know its still there.  Praying for the perfect time for surgery before it grows back and praying for a small area of removal, but it is what it is. God will help.  Thanks to all.  xoxo

Ok, ready for the latest?  We have a prescription from the surgeon at Moffitt for a pet scan.  My insurance company will not authorize payment.  Cash payment is not an option?  Now I have to make calls and find out why and what happens now.  Need to get the petscan scheduled and finished before 1/28.  My initial reaction. "I dont give a shit!"  If I have to get a petscan, you guys make it happen.  Not up to me! I will be at Moffitt on the 28th regardless.  
Please God dont let this thing grow back.  Keep the devil at bay.  I will try to do what I can, be healthy and work hard.  So many need my prayers.  Be assured as I pray for myself I have you on my list.

Blood work on Monday came back great.  I have a pain where my bra goes under my right breast.  Dr. Patterson ordered a chest xray.  I dont know if I have ever had a chest xray before but I will get one Thursday same day as chemo.  The pain feels like a baby kicking you in the ribs, maybe heartburn? I have the pain more on than off, but not constant.  I gave the pain a level 4, meaning I can live with it without drugs, but its painful and want it gone.   Next week I have off.  My mother has been in an accident, she was hit and thrown out of her golf cart.  It was just a matter of time, in the villiages, old people in big cars and lots of golf carts,  what a horrible thing, I feel so bad.  Broken right leg, cuts, bruises and all the skin off her right arm.  Ugh....poor mom.  I need a trip to the Villages to see her. 
Meanwhile this is my onc at HCH, Dr. Stephen Patterson.

I have been busy.  I am teaching twice a day, the hours make it so I can be at the club for lunch and help start the afternoon game.  So today is a triple.  I feel fine,  Some headaches, sore muscles (I dont know from what!) but all in all feeling stronger and waiting to see the surgeon.  Next week busy again and will have to get a full body pet scan along with pre-op blood work.  Apparently Rick Gonzalez is very busy at Moffitt, like til the 2nd week of Feb.  However, I have to get on the surgery schedule and if the tumor grows back I will be put on the table in front of others.  So do I have a date, no, will I have surgery, yes.  I will write more when I know more.
Mom is at Lindas in Weston.  God Bless my sister Gloria that got her here, God Bless my sister Linda that is housing her, and God Bless Ken, Linda's husband who has the knowledge and stomach to care for and dress my mom's deep wounds.  God Bless mom,  help her heal and get strong again.

Since I had chemo on Friday we delayed taking blood til today.  That gives me time to heal and make really good blood, I hope.  So bloodwork at 9 AM, then Doc at 11:30.  Guess I'll go to the club and work on end of year reports in between visits.  There are more than one, they are calculating jobs, W-2, 1099, 941.  I love working with money, on books, balancing things and reporting to the masses.  Anyway, playing with my good friend Cass Paley today,  he comes from Pembroke Pines area so I dont get to see him often.  A fine man and a good catch for some lady.  Working tonight and then Chemo back on Thursday.  Good!  I am going to keep busy til 1/28.  I am fearful, but there is nothing I can do about it at all.  God, I am in your loving hands.  Let my surgeon schedule surgery, cut it all out and be done with this cancer.  You see, mine is not remission, mine is removal and begone.  But angio sarcoma is tumor of the blood vessels and I imagine it could reoccur.  I guess I have weak blood vesssels?  Random, rare, agressive.  This process is taking way too much time, there might be more treatments after surgery, like radiation or more chemo. boo.......
Anyway, you see it just proves that prayer is the only answer,  good attitude, they tell me is important.  Thanks for your prayers.