Sunday, April 28, 2013

Yes I lost my hair before, but I had a soft white fuzz that remained and even grew, on my head and under my arms.  3 weeks into radiation, my hair fell out and left nothing!  My scalp is mostly w/o hair and soft baby skin 3cm around the graft.  Then beyond that I have hair that is growing and shows when I wear the headbands/buffs.  They are very wide, thank goodness. Its a wide area now and I am just the ugliest I have been so far.  Ugh...
Meanwhile the grafted skin seems to be losing the "football" leather look, near the temple.  It is so soft and smooth.  The rad guy Henry says it will shed. 
Party last night, party today.  Bridge and bridge friends are fun things, its nice when its social.
Leg is still coming along, slowly!  Mercer gave me a bottle of Gold Bond for the itch.
Thanks for caring!  God Bless.

Wednesday, April 24, 2013

Observations, the hair is not being burned off.  It is falling out in clumps like it did the first time.  But just 3 cm around the graft.  So the extreme pain when I touched my scalp was just like before.  Feels like it is being pulled out by the roots.  Anyway, I had a good cry.  Expected, but still shocking.  Lost my sideburn for now.  I have aloe on the skin now and everyday twice a day.  Hump day, 3 weeks and 2 days left. 
Another observation, do you realize how much your skin moves, how supple and sometimes the harder you rub it the better it feels, well my forehead is something else, literally.  It hurts to yawn, its hurts to sneeze,  both actions make movement in your forehead and this does not move.  (I dont think I want it to move!)  I think I mentioned the muscle over my left eye was cut or damaged so I cannot raise that brow at all. 
Another thing, my appetite for bad food has remained and so has the 25 pounds I gained while on chemo with steriods.  I have no excuse now. Time for some serious change in the way I eat.  Need to get all organic, more raw vegis and fruits and then the weight will drop off and I will be healthier. 
Oh this dog is filled with mischief!  She pees and shits in the house at night when I work 2 sessions.  It usually looks like a hurricane hit the inside of the house.  I need to find a way to hook up a camera, perferably from my computer, and record what happens when we are away. 

Sunday, April 21, 2013

I have finished 2 weeks of radiation.  Weekdays 9:15 AM.  4 more weeks.  They are radiating 3 cm around the graft.  My hair is being burned off I assume.  My skin is sore and red where there is no hair.  I just put some more aloe on it.  I have been busy, I have had energy.  I wish the healing process would be quicker.  My leg looks like it did 2 weeks ago.  Groan....what a process.  Pray for a speedy healing for me and my mom.  She is still struggling.  Still growing skin on her upper and lower right arm and now she suffers even more with arthritis.  Luckily my daughter is perfect and works her buns off (literally :)).  Love you all.  Thanks for checking in on me. 

Friday, April 12, 2013

Mona

I am feeling tired,  guess I will need to slow down, take a nap, and I have to hydrate.  My leg is blistered still and painful, nurse says it should be better by now.  Sure wish it was.  Note to self:  NO SUN.
I had an opportunity to direct the bridge game for the Go Pink, Breast Cancer Fund raiser with 23 vendors featured for shopping.  I enjoyed the speaker who of course was talking about diagnosing breast cancer and the new protocols being used and more details that I lost track of,  the point is I am moved by all this money and the generousity of so many to help with cancer research. 
Today I found a tweet from a follower from December 2012 about angiosarcoma and research papers I should read.  I wonder why I found it today.....
Yes, I use twitter as well as facebook.  I just love being socialable.  Love and Kisses.

Wednesday, April 10, 2013

3rd Day of Radiation (RT).  The concert was the Eagles. We left there and got a new dog.  I am thrilled with her, Mona Lisa is 1 year old, 9 # shitshu/terrier mix.  Very cute and gets along with the boys.  Tired,  no bridge today so I will take a nap.  Here are some pics:  The area that gets radiated is the cushy part around the graft.  I apply aloe vera to the area twice a day.

She is very cuddly too. 

Thursday, April 4, 2013

Hi there,  2nd Overall in the Bridge Tourney with Doug Nelson!  12 Gold points.  Sweet.  We are playing again tomorrow.  I got a call from RT (radiation treatment).  We will start Monday once a day, 9:15 AM.  Good news.   

Monday, April 1, 2013

My leg is still driving me crazy with itch as this new skin is still finishing.  Well Henri from radiation called 1:30 today and I had to cancel my 2 PM class to get fitted for my mask.  I went like a good girl intending to start tuesday morning.  Then I get a call, delayed til Thursday!  I said no, delayed til Monday morning.  I am going to the tournament.  What could they say.....I need to keep working, the bills are coming in.  The trust is depleted. I have $6000 out of pocket per year with my insurance.  I should be ok if there are no surprizes.   Love to all.