Saturday, May 25, 2013

I am totally emotionally involved in my AS FB group.  As they face their trials and fears, as they go through or watch family suffer with angiosarcoma I suffer right along with them, praying and cursing and realizing how lucky I am.  So far, knock wood, phew,phew.   I have a busy time scheduled before my trip to Tampa (6/10) for CT scans and a visit with Dr. Gonzalez the surgeon.  The group calls it scanxiety.  We will drive over to the Villages after Moffitt to see mom and then home. I am still burned up, sores on my brow, blisters on my leg again.  Skirts.  People handing me catalogues on wigs and fake bangs.   I am working everyday.  I go to bed early every night.  Thanks to my crew at the club and my wonderful husband and all of you.  Kisses. 

Friday, May 17, 2013

Well, here we are after 7 months of chemo, a month of 2 surgeries and time to recover, 6 weeks of radiation and I am done!  10 months later my skin is burnt, my hair is gone, the weight is still on me, but I am finished with treatments so it feels good.  I plan on remaining NED and I want them to remove the port.  I doubt I will do this again.  There will be no more.  I thank God for His plan to keep me alive.  I thank you for praying for a good outcome.  I think we have done it!!  Love you.  FUAS!

Tuesday, May 14, 2013

3 more days of radiation.  Very happy about that.  Looking forward to having hair again.  I really must make an effort to stay out of the sun.  My leg is acting up again with another blister.  I have added coconut oil to my daily regiment.  Supposed to be really good for the skin.
Tourney time at the club so I am extremely busy right now.  Directors taking days off and events coming up.  It wont slow down til mid June.  People will then leave for graduations and weddings and vacations. 
I want to concentrate on healing.  Thanks for keeping up with me and caring about me.  It makes a difference.