Saturday, May 25, 2013
I am totally emotionally involved in my AS FB group. As they face their trials and fears, as they go through or watch family suffer with angiosarcoma I suffer right along with them, praying and cursing and realizing how lucky I am. So far, knock wood, phew,phew. I have a busy time scheduled before my trip to Tampa (6/10) for CT scans and a visit with Dr. Gonzalez the surgeon. The group calls it scanxiety. We will drive over to the Villages after Moffitt to see mom and then home. I am still burned up, sores on my brow, blisters on my leg again. Skirts. People handing me catalogues on wigs and fake bangs. I am working everyday. I go to bed early every night. Thanks to my crew at the club and my wonderful husband and all of you. Kisses.
Friday, May 17, 2013
Well, here we are after 7 months of chemo, a month of 2 surgeries and time to recover, 6 weeks of radiation and I am done! 10 months later my skin is burnt, my hair is gone, the weight is still on me, but I am finished with treatments so it feels good. I plan on remaining NED and I want them to remove the port. I doubt I will do this again. There will be no more. I thank God for His plan to keep me alive. I thank you for praying for a good outcome. I think we have done it!! Love you. FUAS!
Tuesday, May 14, 2013
3 more days of radiation. Very happy about that. Looking forward to having hair again. I really must make an effort to stay out of the sun. My leg is acting up again with another blister. I have added coconut oil to my daily regiment. Supposed to be really good for the skin.
Tourney time at the club so I am extremely busy right now. Directors taking days off and events coming up. It wont slow down til mid June. People will then leave for graduations and weddings and vacations.
I want to concentrate on healing. Thanks for keeping up with me and caring about me. It makes a difference.
Tourney time at the club so I am extremely busy right now. Directors taking days off and events coming up. It wont slow down til mid June. People will then leave for graduations and weddings and vacations.
I want to concentrate on healing. Thanks for keeping up with me and caring about me. It makes a difference.
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