It's been a while since I have posted.  Since that time we have lost a few more of our AS warriors to this horrible cancer.  Personally, I am feeling very good.  My forehead is mostly as good as it's going to get.  I have about 30 buffs to use with my wardrobe which had to change since my bridge shirts had the pompano logo. 
I am walking and working at Deans and teaching and preparing for January classes and doing jigsaw puzzles.  Eating healthy meals,  drinking and eating dark chocolate pieces.  The weight stays on.  Aches and pains are being explained away with arthritis and being overweight.  Bumps and bruises are watched closely.  Lately I have grown a couple small skin tags and one mole-like bump under my chin on the right side that I am watching. 
The only doctors I see are the derm doc and the dentist.  Paul on the other hand is suffering, AGAIN and STILL, with the sinus/congestion problem that saps his strength and makes it very hard to sleep. 
I have used this site to thank all of you who care and helped me through a very dark time.  I fought for those who told me to fight.  I was led in the proper direction probably by the grace of God.  I came out on the other side. I am grateful, hopeful and blessed.   I use this site as a diary, a record of this amazing, unstoppable, incurable, fucking cancer.

Big time changes,  I resigned from the Pompano bridge club on Thursday 7/17 due to personality conflicts and disrespect from the people now in charge.  The reason is health issues and sure enough I got this terrible rash and now swelling around my left eye.  Doctors in my life again.  A summer free and freedom from the God awful responsibility of running a full time bridge club.  No longer am I in charge of trying to keep Paul out of trouble from the people who just dont understand him. I will run seasonal games and teach classes at the Royal Palm Y&CC and The Hillsboro Club.  For this work I am extremely grateful!  Also looks like I will working with Dean at his club in Boca. 

Here is a picture of my nasty angry head. 

This reaction was probably caused by switching to J & J no more tears head to toe baby wash.  I was told this product has an extremely toxic formula and is banned in Europe!!  Luckily I have a soft cap with a brim, given to me by a friend, that I can wear.  

Time for the next chapter of my life.  After 5 years at the club I can say I accomplished my goals.  I more than doubled the membership,  I built the bank account, I filled the seats and I made lots and lots of new friends.  Time to "Let it go!!"

Love and Kisses and Thanks.

Hi, long time since I have posted since nothing remarkable has happened my life.  June is here and I am still living my life in good health for a 65+ year old who survived cancer (and its treatments!).  I have been poweer walking, about 2 miles with the dogs to curves music (140bpm) its a fun pace and I pretend I am dancing.  Funny thing, my face sweats from the eyebrows down, no sweat on my forehead - either side.  Weird!  Instead my graft is peeling, very very slowly.  Flaking no matter how much I keep it oiled, it is flaky.   A year ago Henry in radiation told me the graft would peel.  Geesh....
Paul is still fighting his awful congestion and polyps up his nose and no sense of smell.  Ugh....2 1/2 years later. 
I saw my nurse/friend, Lil.  She asked about my follow up.  I told her I was not sick so there is no follow up.  She was appalled.  I am capable of being stupid, but I choose not to do this again. 
My mom is in constant pain, at 85 with no relief in site for her sacroiliac area.  Getting old is still no fun.   
Love my friends, family and bridge players.  God Bless.

My shin is finally getting better, my upper left arm still has a little red mark, but looks better and oh....SCANS ARE CLEAR!!  Still NED and plan to stay that way.  2/7/14 was a wonderful day.  Thank you God, Thank you friends for your prayers.

I have not written because I am very busy,  the minute I slow down my eyes close and I have to sleep.  It is 7:30 Saturday night,  Paul is shrimping with the kids.  He has been congested and weak again.  Its pretty awful, today they did a CT on him!
3 weeks ago I was chasing Mona in the back yard, tripped over a pipe and ripped the skin back on my lower shin, right leg where the old lady red mark is.  Ugh... I threw myself in the shower til it stopped bleeding.  I also acquired a red mark on my left upper arm which must have been a spider bite.  After 3 weeks it seems better but it sure is hard to grow skin - I think I have said that before many times.  I still have the small red mark on my arm.  I used drawing salve on it. Go away!!
I called to request a CT,  the onc wants chest, abdomen and pelvis with contrast.  I have to be injected and drink the liquid for this scan.  I said "no head" they said no, the superficial tumors do not light up (my AS never showed on any scans!)
February already.  January was a blur.  Working at Royal Palm Yacht and CC, also at Hillsboro Club (next to the lighthouse) during the season.  What a treat, lovely people and lovely locations.  Still love the Pompano Club and work there everyday.  God has blessed me with a busy schedule and people who appreciate me.  That and the love of my family is heaven.