Wednesday, November 20, 2019

6 weeks later,  no treatments.  Very into nutrition and now on plant based foods.  It is not easy!! I am fighting, I am in charge, I am researching and most importantly I am basking in love and recommendations from friends and family who are seriously involved in my path.  God is my main stay calm beacon.
Insistent, persistent, texts.  .coms to look up and research, tapes to watch, you tube, podcasts, books to read and recipes to find:
My sisters think I should go to this counseling place, give my blood and have a CBD oil program just made for me.  They say it works, people are being healed!
I don't believe it.
or this one supported by many is that I should contact Sylvester - John Trent - who seems to have success with AS f/s patients who got it from the sun.  Now with all I know about angio, you do not get it from the sun!! mine is not from the sun.  I found out his treatment involves mega doses of antibiotics.  I do not get along with antibiotics.  Strike two.
What do I believe in?  The power of God, my power to trust this path I have chosen.
Also a brand new warrior in my war is my husbands ex.  Yes, Cassie and Shannon and Ben's mom.  She more than supports my path, she has warned me about those who will try to scare me into treatments.  And sure enough, when I went to my primary for pain pills (if I need them) he got into my face and said "You are in denial, have you contacted hospice?, You are going to DIE, you will never cure yourself with diet, It will KILL you, go to Univ. of Miami now."
Done for now.  This is my diary I choose to share so I can continue to grow. I love you, thank you for your prayers.
And I have lost some weight!

Friday, October 25, 2019

I have decided to take control of this situation.  I will starve the nasty cancer tumor and blast it with high nutrients and even lava ash!!  Started on Sunday after the devastating news that AS is back in my neck and jaw.  And they have mis-dx this sucker for 1 1/2 years!  Phoey and shame on them.
Meanwhile I was gifted a book "Cancer free with Food" and I am optimistic about this path.  Dr. Medina advised chemo, surgery, reconstruction and rads.  I said no no and no and thanks for your time.  As of today almost 2 weeks without sugar, gluten or alcohol.  Pray for me.  I told Paul, remember when I first got a computer virus and I was frozen and had to purchase another and start over.  when it happened again, I got out the original discs that come with a desktop and rebuilt the damn thing myself.  As a result, I am not as afraid of the viruses as I used to be.  Now that AS has returned I am calm and determined.

Hi, In January 2018 I went to Dr. Arena (primary) because I feel a lump in my left side neck.  He didn't feel it.  I went to Dr. Deture (a periodontist) who filmed an "amoeba" dancing around on the xray he took.  However, he didn't address the lump in my neck but said "it is not cancer".   So I went to Dr. Lapco (expert ENT), he did a biopsy and said it was yeast!  He prescribed antifungal rinse - twice - but to no avail.  Deture told me to use bleach in my waterpik.  OY!!  I went back to Arena who said lapco and deture were crooks so I found Dr. Kufperman who sent me to DPI for a scan.  I came back - not cancer.  Meanwhile since the lump was moving and changing, they finally referred me to Cleveland Clinic - an expert ENT there, Dr. Medina.  This was July - and I could not get an appointment with him til Sept. 27th!!  WTF!!  As Dr. Medina was examining me and posting my history of AS he started saying well your lump reacts like AS (he has seen it before).   The lump now is in my lower left jaw and in my throat.  Well I zoned out.  I told him I will not fight AS again.  He ordered an MRI and Pet from Cleveland Clinic since he does not trust DPI.  Today is the day.  I am fasting.
Look, I don't think it is cancer, I don't think it is AS.
I use this blog as a diary of these stupid rare problems.  I will try to post the picture of me as the Godfather (big jowl).
Big plus from AS group:  The request for scans cited a malignant mass.  I posted WHY malignant?? and one of our members responded that it had to be that way so both scans would be covered by my insurance.  Well - Thank YOU!!
And since it is Yom Kippur I have asked everyone to please say my name today. I love you all, I thank you for your prayers - more than you know.

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