Wednesday, November 20, 2019

Hi, In January 2018 I went to Dr. Arena (primary) because I feel a lump in my left side neck.  He didn't feel it.  I went to Dr. Deture (a periodontist) who filmed an "amoeba" dancing around on the xray he took.  However, he didn't address the lump in my neck but said "it is not cancer".   So I went to Dr. Lapco (expert ENT), he did a biopsy and said it was yeast!  He prescribed antifungal rinse - twice - but to no avail.  Deture told me to use bleach in my waterpik.  OY!!  I went back to Arena who said lapco and deture were crooks so I found Dr. Kufperman who sent me to DPI for a scan.  I came back - not cancer.  Meanwhile since the lump was moving and changing, they finally referred me to Cleveland Clinic - an expert ENT there, Dr. Medina.  This was July - and I could not get an appointment with him til Sept. 27th!!  WTF!!  As Dr. Medina was examining me and posting my history of AS he started saying well your lump reacts like AS (he has seen it before).   The lump now is in my lower left jaw and in my throat.  Well I zoned out.  I told him I will not fight AS again.  He ordered an MRI and Pet from Cleveland Clinic since he does not trust DPI.  Today is the day.  I am fasting.
Look, I don't think it is cancer, I don't think it is AS.
I use this blog as a diary of these stupid rare problems.  I will try to post the picture of me as the Godfather (big jowl).
Big plus from AS group:  The request for scans cited a malignant mass.  I posted WHY malignant?? and one of our members responded that it had to be that way so both scans would be covered by my insurance.  Well - Thank YOU!!
And since it is Yom Kippur I have asked everyone to please say my name today. I love you all, I thank you for your prayers - more than you know.

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